A FAMILY from Westbury recently organised a charity darts match and quiz, supported by former world darts finalist, Mike Gregory, to raise money for their daughter who suffers with a rare disorder which affects her breathing.
Nikita Hughes, who is known as Dolly to her family and friends, is five years old and suffers with congenital central hypoventilation syndrome, a disorder which means she must be supported by a machine at night to help her breathe.
Due to a certain position Dolly has to sleep in, she needs a specific bed, and the family are desperate to raise the money to buy the bed. Her dad Eddie Hughes said, “It’s really important to the whole family that we buy the bed for Dolly. She needs to be as comfortable as possible, especially when she has to sleep with a mask on all night.”
The match was held at the Labour Club in Westbury and the evening raised around £400 which will be put towards the specialist bed.
Eddie said, “It went really well but unfortunately Dolly couldn’t come because she has to be ventilated in the evening, but we told her all about it.
“We raised £400 but still need another £2,100 so we are looking at organising other events, possibly a bingo night. People have said they would come again if we did another darts night, so that is positive.
“40 people came which was a great turn out; it would have been nice to see a few more members from the Westbury darts teams.
“A huge thank you goes to Malcolm and Sharon Brewer who won the raffle. They very kindly donated their prizes back to Dolly. They won £50 and a bottle of champagne which was auctioned for £30. We had never met them but they had heard about the evening and wanted to support us. We are very grateful to them.”
